I saw my PCP today. She already had a progress note from my neurologist, the results of my CT scan and other lab results. We had a good talk about everything that’s going on with me. She agrees to help me coordinate all of my doctors and medications as long as she is kept in the loop about things. I wanted to hug her when she said that!

We are working on some things diet wise to get my Potassium levels up. She also ordered a blood test to get my levels so that she can see if the disgusting medicine that I have to drink is working or not. If not she feels it’s not worth me taking it any longer. She also encouraged me to remain positive if I need to increase my medication for the Myasthenia Gravis.

She told me that MG is a cyclical disease and I just may be going through a bad time. Would I rather feel as badly as I do or take medicine that’s worked in the past to help me? I’ve been focusing so much on the Potassium levels and not wanting to take more medicine and not realizing that I what I need to do is focus on getting better.

My attitude has changed from the appointment with her. She’s easy to talk with and feels that it’s my right to ask questions and even refuse medical care that I feel is wrong. When I told her about the lower bowel series fiasco, she pretty much said, “Go, girl!”. She appreciates my intelligence and understands that I am very knowledgeable about the chronic illnesses I have. Dealing with too many doctors and medicines is what’s getting to me.

I’ve already bought some of the food and juices she suggested (dried apricots, dates, cranberry juices) and I’m not taking the medicine that was prescribed for me that is contraindiacted for MG. I am going to call the pharmacy tomorrow to be sure that something like this doesn’t happen again.

I feel like a weight has been lifted off of my shoulders.

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